His stay was so brief, but his life was so huge. He is loved and so very missed. Four years ago today he passed away and left most who knew him changed. Love you to the moon and back little man!
I just found your blog by providence and wanted to express my empathy for your losses. My youngest son died at the age of 10 months from a rare genetic disease so I have sort of been in your shoes.
I really don't mean to spam you but I just noticed Hodge's date of his birth into heaven......my son Brennan died on Feb. 2, 1996. It just goes to show there are no coincidences.
I am married to my high school sweet heart. I am the mother of three. One girl and two boys. Both boys are now in heaven and we can not wait to see them again one day! Daily I struggle to die to myself so that I might truly live!
We started dating when we were fifteen and have been married for six years!
Kensington
Our beautiful five year old who we are positive is a genius :-)
Jacobsen
Our precious little boy who went to heaven on January 14, 2008. He was four months old.
Hodges
Our spunky little man who passed away on February 2, 2010. He was almost 15 months old. He had SMA just like his big brother, Jacobsen.
About SMA
Spinal Muscular Atrophy (SMA) is a terminal, degenerative disease that impacts the voluntary muscles in infants and children including the ability to walk, sit, stand, eat, breathe, and even swallow. Ninety percent of children born with SMA die before the age of two. Although SMA is not a household name, the gene responsible for SMA is unknowingly carried by 1 in 40 people or nearly eight Million Americans. There is currently no treatment or cure, but SMA research is extremely mature and researchers have stressed that one is attainable in the next five years if provided the appropriate resources.
What a sweet smile! I'm sure Jacobsen and Hodges (and Jeffrey!) were busy welcoming a new little angel today (Tripp Roth, who had EB).
ReplyDelete'Lucy'
Love this little man. Our lives are changed because of him.
ReplyDeleteAshley, You and your sweet family have been on my heart this week. I still think about that precious little face all of the time.
ReplyDeleteKrista Gadd
Beautiful angels.. so sorry for your loss. x
ReplyDeleteI just found your blog by providence and wanted to express my empathy for your losses. My youngest son died at the age of 10 months from a rare genetic disease so I have sort of been in your shoes.
ReplyDeleteThey were beautiful boys.
I really don't mean to spam you but I just noticed Hodge's date of his birth into heaven......my son Brennan died on Feb. 2, 1996. It just goes to show there are no coincidences.
ReplyDeleteHi Ashley, read your blog and would like to let you know that you are the world greatest mom.
ReplyDeleteYou are not alone. My thoughts are with you.
God bless you and your family.