We are still here and doing just fine!! I will try to update with what we have been up to and add some pictures this week! Thank you for continuing to check in on us!
Hi to the Manross Family, I came upon your blog and wanted to send my love and thoughts to you. What a beautiful family you have, on both sides of the "veil" Kath www.lifeanddeathmatters.ca
I am married to my high school sweet heart. I am the mother of three. One girl and two boys. Both boys are now in heaven and we can not wait to see them again one day! Daily I struggle to die to myself so that I might truly live!
We started dating when we were fifteen and have been married for six years!
Kensington
Our beautiful five year old who we are positive is a genius :-)
Jacobsen
Our precious little boy who went to heaven on January 14, 2008. He was four months old.
Hodges
Our spunky little man who passed away on February 2, 2010. He was almost 15 months old. He had SMA just like his big brother, Jacobsen.
About SMA
Spinal Muscular Atrophy (SMA) is a terminal, degenerative disease that impacts the voluntary muscles in infants and children including the ability to walk, sit, stand, eat, breathe, and even swallow. Ninety percent of children born with SMA die before the age of two. Although SMA is not a household name, the gene responsible for SMA is unknowingly carried by 1 in 40 people or nearly eight Million Americans. There is currently no treatment or cure, but SMA research is extremely mature and researchers have stressed that one is attainable in the next five years if provided the appropriate resources.
Hi to the Manross Family,
ReplyDeleteI came upon your blog and wanted to send my love and thoughts to you.
What a beautiful family you have, on both sides of the "veil"
Kath
www.lifeanddeathmatters.ca